For all the people who wonder why I am on a Crusade to STOP
Hi Lloyd.....hope you are well...since we last spoke i made
a bad mistake in being scared to death into taking the pegintron.
My only excuse is that I was so traumatized and not at all
thinking. what you talked about didn't eeven register and
do remember the cost but the cost that the tx has done is
far greater. didn't work either. The doc kept me on it for
over a year. After the 1st shot, it was all over. My mind
went. memories of that time period is nearly a blank and what
I do recall are faded memories but i did go insane. My son
in particular told me things...omg. I was not symptomatic
except for an acute episode which was dx as one of the strange
flu viruses going around. no blood tests. I got tested due
to finding out about mt employers hep c. I managed a horse
supply store and did repairs and making saddles replacements
as she also did so shared the same tools...and so on. So got
tested. I dealt with this alone for the most part. wish someone
would have take! n me by the hand and made me stop taking
the tx. I remember thinking i was going to die and was always
surprised that i woke up. Either it was mania or down, sleeping
20 hours per day. The mania and insomnia kept me up....I made
starblanket quilt that i barely remember doing.....I hung
it up in memory of that....and thank goodness for Art Bell!
Don't recall much but that show was like a lifeline or something
to keep me in touch with being alive or something....all insane.
Soooooo.....after the tx, viral load was down to 300 and yo
yo'd to 3000. where it is now after one year, have no idea.
I was on the freebie program....had every side affect you
can think of.....On my last visit to this doc as it turned
out...he FIRED me.. i complained about the lasting sides...months
had past and things got worse..including my brain...so son
came with since brain went somewhere. The doc was incredibly
nervous...very...My son asked about his affiliation with Schering
Plough and he said he had none, then a few minutes later when
son asked again differen tly, he said he got a STIPEND...then
retracted that....I told him that since the brains are a bit
back, I realized the that at week 12 it was obvious that no
significant drop in viral load or svr nor at week 24 was the
viral load undetectable or percentage wise low enough to consider
going on. One month bloodwork was all I got and cysts, one
which got infected and painfully had to be drained and all
the other sides inclusding this black rash on my back...which
felt likr=e being whacked with a board of nails..i jumped
around when laying out quite a bit..... well, after he fired
me...severed our patient/doctor relationship as he put it....i
walked out and siad i hope his studies are going ok..he said,
"Thank you'...and then "we..wewewell......."
My question to you is what can I do now? SAMe? The Protocal
you do? Legally, is this doc guilty? I have been trying to
get lawyers to talk to me....touchy subject, it seems. any
help would be appreciated. ! also, Paul is not well. If you
don't know. I visited him in the hospital a few times but
he's out for now. Worried about him. He means well, that guy.
Ps: am doing herbs for now. seems to help. ran out of money
and didn't do for a few weeks and felt like sheeeet. sorry
for rambling. i don't have the number Paul gave me of yours.
did you call or me? My memory sucks.Thanks, Lloyd