PEDS-C: Pegylated Interferon +/- Ribavirin for Children With Hepatitis C
Thursday, April 06, 2006 9:01 AM

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Kathleen B Schwarz, MD, Principal Investigator,
Johns Hopkins University

Dr Schwarz,

I have a question about your clinical trial as noted in the subject line.

How can you give this drug to CHILDREN, especially YOUNG children???? I am absolutely appalled at a clinical trial of this nature.

If you've never been on Interferon, you should really try it out for yourself for at least 6 weeks before you put young children through this HELL. And if you don't want to jump out a window by then, I will really be surprised.

This is truly a case where "SCIENCE" scoffs at MORALITY and CONSCIENCE.

So please put the CON back in SCIENCE, and don't CON the CHILDREN.

I survived Peg Intron and it's horrors. And by the way, it didn't work.

Fred F.
San Rafael, CA




From: Lloyd Wright
Sent: Thursday, April 06, 2006 9:37 AM

Hi Fred:

What you did is GREAT! I have read this but am at a point of seeing that no one cares, no one really thinks interferon is really as bad as I say it is except ones who have been on it. People think that getting rid of hep c is worth the side effects they are told about.

I see one big issue. Interferon causes serious brain damage in many people. It causes some brain damage in everyone on the first shot. I think that if people understood that they are going to have their brain damaged and perhaps be permanently damaged for life perhaps they would consider options.

I discussed interferon history with Dr. Nicholas Gonzalez. Dr. Gonzalez was close to the doctor who was the major pusher (advocate) of this drug for 10 years from 1974 to 1984 at Sloan-Kettering.

Dr. Gonzalez said that Interferon never cured anything. It was primarily used for cancer and still is. Because it generates Billions of dollars a year the drug is hard to bury. People who use it fit in one of two categories, still sick or dead.
That is the same that I see.

Thank you Fred
Lloyd

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