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I don`t test positive to hep C anymore

Sent: Monday, January 21, 2013 5:11 PM
To: Lloyd Wright
Subject: [Contact Lloyd] 3 years post interferon.


Marian sent a message using the contact form

Dear Lloyd, I had two rounds of interferon and the second one had ribaviron added and I have had three years `clear` of hep c showing on test, but my quality of life is impaired and I have problems which I thought were caused by two very dramatic bereavements in my life. Now I  think my mental health problems  inc cognitive and memory problems are from interferon. I am pretty scared and also disability don`t wish to pay me anymore because I don`t test positive to hep C anymore. Could you let me have some info I could use about my symptoms. The local doctor is being very helpful but the Hepatitis C clinic is not, they say I should go back to work after 20 years of hep c and 14 being so ill I could scarcely get out of bed.

Thank you. Marian

Post Interferon Syndrome

Sent: Sunday, October 14, 2012 12:28 PM
To: LloydWright
Subject: [Contact Lloyd] Post Interferon syndrome
Pete Busch sent a message using the contact form at http://lloydwright.org/messages/contact.


I had to have Interferon Injections in 2003 for aprox. 6 months for treatment of Hep "C". Where I came in contact with this virus I guess I will never figure out.  All I know for sure is the Doctor said the Virus was gone and it was very doubtful it would ever return. So far, So good. It's 2012 and still no sign of it.

Interferon Clinincal Trials From Alfred Hospital

Sent: Friday, July 13, 2012 11:40 PM
To: LloydWright
Subject: [Contact Lloyd] clinincal trials from alfred hospital aussy

clark steve sent a message using the contact form at http://lloydwright.org/messages/contact.

hi sir.

6 weeks back I finished a clinical trial being conducted thru the Alfred hospital in aus. weekly Interferon injections with Ribavirin + two other tablets unknown. result was after two weeks on the drugs I had a zero count all way thru to end of the six months.

now I have some bad issues that I want to know if you can advise on.

I feel messed up. mentally I can not handle just a little tiny problem or I become so unwell I can't speak hardly. my left foot is numbe as well as terrible feelings of freezing in one leg and sometimes in my hands. nothing changes and every day is the same.


can u point me where to look, maybe what tests to do sir?

if u can, I so appreciate.

yours
Stephen , uk citizen, age 53


Sincere thanks and a bit of my story

To: lloyd
Sent: 2/16/2012 7:53:20 P.M.
Subj: Sincere thanks and a bit of my story

Dear Mr. Wright:

Firstly, I am a 60 year old male who can truly relate to your life/lifestyle back "in the day", perverse humor (compliment), and your brave journey to save your own life when all the "experts" said you were nuts and just accept death. The difference being that I had you as my personal guide, along with a few doctors who told me about you and provided additional guidance.

Gilead Says Hepatitis C Patients Had Relapse in Trial, Shares Plunge

Shares of Gilead Sciences (GILD: 44.69, -2.31, -4.91%) fell 14% Friday morning after the drug maker said a majority of patients enrolled in one of its studies experienced a viral relapse within four weeks of completing the 12-week experimental hepatitis C treatment.

Six of the eight patients that previously had a “null” response but were taking GS-7977 plus the widely used antiviral ribavirin as part of Gilead’s Electron study had a relapse.

I Started Interferon / Ribo. 13 Weeks Ago

Sent: Wednesday, November 16, 2011 8:41 AM
To: LloydWright
Subject: [Contact Lloyd] Interferon-having terrible effects after

J D sent a message using the contact form at http://lloydwright.org/messages/contact.

Hi Lloyd,
My name J D, 48 year old male with Hep C 3a.  Started Interferon / Ribo. 13 weeks ago, within hours of the first treatment became severaly ill, went to emergeny, with chest pain, severe vomitting, heart pound, terrible head pain, sharp pains shooting in head, and more. 

Interferon is a vicious mean poison

Sent: Tuesday, October 18, 2011 8:47 PM
To: LloydWright
Subject: [Contact Lloyd] Interferon is a vicious mean poison

Jeff sent a message using the contact form at http://lloydwright.org/messages/contact.

I did interferon / ribavirin therapy from June 2008 - December 2008.  It was not successful in eradicating  the virus.  It did, however, prove a complete success in disfiguring me, robbing me of my athleticism and life force, and dulling my cognitive abilities.  I developed psoriasis and psoriatic arthritis.  I have embarrassing and isolating rashes where the sun doesn't shine. I constantly go to sun tan booths to keep things in check.  My muscles and joints hurt badly. My brain has been "altered."  That part has slowly gotten better, but it took 2 1/2 years and I am still not the same person I was before.  At least I am not quite so mentally unable to comprehend, prioritize, organize and do.

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